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Leukodystrophy Care Network

Vanderbilt established the Leukodystrophy Care Network (VLCN) in 2017 to bring the expertise of specialists in many disciplines to the care of children with leukodystrophies that including Krabbe and similar severe diseases.

Kevin C. Ess, M.D., Ph.D., Chief of the Division of Pediatric Neurology, leads the VLCN. Our many medical disciplines working together is an essential part of VLCN. Experts involved in the care your child with leukodystrophies include those from neurology, genetics, hematology, complex care, pulmonary care and social work.

The VLCN is a nationwide network with many centers throughout the nation. The parent organization Hunter’s Hope was originally founded to provide support for patients with Krabbe Disease. It has since expanded to include many other leukodystrophies, which led to the concept of a Leukodystrophy Care Network.

The VLCN is helpful because of the way the state of Tennessee screens newborns for genetic diseases. The state now screens for Krabbe, Hurler, Gaucher, Pompe, and Fabry Diseases, and added X-linked adrenoleukodystrophy (ALD) in 2018.

Conditions We Treat

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    Leukodystrophies including Krabbe Disease, ALD, MLD, Fabry, and others

Meet Your Care Team

Jennifer A. Brault
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4.7

Jennifer A. BraultMD

    Genetics, Pediatric Neurology
James A. Connelly

James A. ConnellyMD, BS

    Pediatric Allergy and Immunology, Pediatric Genetics, Pediatric Hematology/Oncology, Pediatric Immunodeficiency, Pediatric Metabolic Disorders, Sickle Cell Disease, Stem Cell Transplant
Kevin C. Ess
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4.9

Kevin C. EssMD, PhD

    Epilepsy, Pediatric Neurology
Sumit Pruthi

Sumit PruthiMBBS

    Pediatric Neuroradiology, Pediatric Radiology, Radiology

Location

2200 Children's Way, 9th Floor
Nashville, TN 37232
Today's hours:8:00 a.m. – 4:30 p.m.