Rare Lung Diseases Program
Finding the right care for your child with a rare lung disease can be challenging. Children's Hospital is one of the leading referral centers in the country for children with known or suspected rare lung diseases, including interstitial lung disease (ILD).
We work side-by-side with you and your child's medical providers to coordinate the best care possible for your child and family. Our team of experts provide evaluation and management for many rare lung diseases. We offer second opinions and other services and support to ensure the best respiratory health for our patients.
Once you receive a referral to our center, our program coordinator, Kathy Russell, will be your first point of contact with our team. She will obtain medical records, coordinate scheduling and help with any other administrative needs. Contact Kathy at:
Phone: (615) 875-6901
Fax: (615) 322-7553
Conditions We Treat
We treat many rare lung diseases, including:
- Lung development disorders
- Lung diseases associated with immunodeficiency / immune dysfunction disorders
- Lung diseases associated with rheumatologic disorders
- Lymphatic disorders
- Neuroendocrine cell hyperplasia of infancy (NEHI)
Why Choose Rare Lung Disease Care at Children’s Hospital?
- Recognized care
U.S. News & World Report has consistently ranked Children's Hospital's pulmonology departments as one of the best in the nation.
- Exclusive care
Children's Hospital has the only specialized pediatric interstitial lung disease program in the region.
- Comprehensive care
Our team is a part of the Children's Interstitial Lung Disease Research Network (chILDRN) and is a recognized Children's Interstitial and Diffuse Lung Diseases (chILD) Clinical Center. We have the resources and tools to provide your child with a comprehensive evaluation, treatment and education.