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Von Hippel-Lindau Program

The von Hippel-Lindau Program at Children’s Hospital takes a team approach to treating children with this this genetic condition that predisposes them to malignant and non-malignant tumors. We coordinate treatment of both children and adults through family-centered care. We arrange for all screening, genetic testing and subspecialty care for children in families where adults have been diagnosed with VHL. We also provide ongoing support and care for children with a verified diagnosis of VHL.

Contact us at (615) 936-1762 with questions or to schedule an appointment.

Conditions We Treat

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    Von Hippel-Lindau disease

Meet Your Care Team

Debra L. Friedman

Debra L. FriedmanMD, MS

    Division of Pediatric Hematology/Oncology, General Hematology and Oncology, Leukemia and Lymphoma, Pediatric Hematology/Oncology, Solid Organ Malignancies
Anthony B. Daniels
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4.7

Anthony B. DanielsBA, MSc, MD

    Adult Ocular Tumor, Detached Retina, Diabetic Retinopathy, Macular Degeneration, Melanoma, Ophthalmology, Pediatric Ocular Tumor
Kimryn Rathmell
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4.9

Kimryn RathmellMD, PhD

    Cancer, Genetics, Hematology/Oncology, Medical Oncology, Prostate, Bladder, and Kidney Cancer, Urologic/Genitourinary Cancer

Why Choose the Von Hippel-Lindau Program at Children‘s Hospital

  • Recognized care

    U.S. News & World Report has ranked Children's Hospital as one of the best pediatric cancer programs in the nation.

  • A team approach

    As VHL is a genetic disease, we work closely with experts in genetics, ophthalmology, neurosurgery, general surgery and otolaryngology to provide leading-edge research and clinical care.

  • Comprehensive Care Alliance

    We are only one of a few institutions in the nation designated as a Comprehensive Care Center by the von Hippel-Lindau Alliance. We are leading the efforts to develop clinical care guidelines for the Alliance.

  • Collaborative care

    We are part of the only National Cancer Institute-designated Comprehensive Cancer Center in Tennessee that treats children, adolescents and young adults, and adults as separate specialties but within one institution. This allows us to offer more options for specialized therapies and access to leading-edge clinical trials not available in other hospitals, for both common and rare cancers. All of our oncology, medical specialty, psychology and support services are available to you.

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